InRAD is a free registry that helps with the collection, combination, and comparison of real-word data. The registry is coordinated by the independent International Registry for Alzheimer’s Disease and Other Dementias Foundation, a health-related not-for-profit entity incorporated in the Netherlands.
The registry platform will launch in 2025, providing a secure, regionally compliant, Azure cloud-based way to share and store data for Alzheimer’s disease research.
Pseudonymised data from consented patients will be uploaded from participating centres to the registry, hosted in Azure Cloud, to advance collaborative epidemiological and outcomes research.
An international network will be connected through large-scale real-world studies, generating evidence to guide practice, encourage knowledge sharing, research, and support regulatory and payor decisions.
We collect the minimum data set needed for care. This makes data sharing feasible in clinical practice and allows longitudinal data collection in untreated and treated patients that is simple, uniform, and available from an individual patient dashboard.
Centres retain ownership and control of their own data, with the assurance that they will be acknowledged on all studies they contribute towards. All registry tools and centre participation is free of charge, including our advanced and secure IT infrastructure.
We will support data interoperability within and across Alzheimer’s disease registry efforts with data sets defined by community stakeholders. When we can harness the power of large, harmonised data sets, this provides a strong basis for research and customised sub-studies.
Learn more about the founding members of InRad below and we look forward to introducing new Board Members and Scientific Leadership Group very soon.
