Uniting registry efforts in Alzheimer’s disease

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Minimum Data Set Paper Published in JPAD

Our manuscript, Real-world datasets for the International Registry for Alzheimer’s Disease and Other Dementias (InRAD) and other registries: an international consensus, has been published in The Journal of Prevention of Alzheimer's Disease

Based on an international consensus, we have defined a minimum and extended data set for real world data collection in Alzheimer’s disease.This vital piece of work creates a foundation for data harmonisation and future collaboration between national and international registries, including InRAD, enhancing the power of large data sets and validity of real-world studies.

Data Dictionary

The InRAD Data Dictionary is an essential resource defining the structure and content of InRAD's sustainable data collection and collaboration platform. Built upon our Minimum Data Set (MDS) and Extended Data Set (EDS), it provides a robust foundation for harmonised data collection.