From presentations to clinical papers, if you missed anything related to the InRAD registry, you will likely find it here. If you want to join InRAD, the Ethics Submission Pack has the information you need to guide you through ethics approval.
Perneczky R. et al. The international Registry for Alzheimer's Disease (InRAD): A Practice-Based Minimum Dataset for Harmonized Data Collection in the Real World. Poster and oral e-presentation. International Conference on Alzheimer's and Parkinson's Diseases and Related Neurological Disorders (AD/PD 2025), 1-5 April 2025, Vienna. Austria
Perneczky R. et al. International Registry for Alzheimer’s Disease and Other Dementias (InRAD): Application of longitudinal practice-based data to augment and conduct clinical trials in early-stage Alzheimer’s disease. 17th Clinical Trials on Alzheimer’s Disease (CTAD), 29 October-1 November 2024, Madrid, Spain
Hyde R. et al. The International Registry for Alzheimer’s disease and Other Dementias (InRAD): a new database and collaboration platform. Alzheimer Europe 2024, 8-10 October 2024, Geneva, Switzerland. P22-03
Perneczky R. et al. Data harmonisation to foster collaboration between Alzheimer’s disease registries. Alzheimer's Association International Conference (AAIC), 27-31 July 2024, Philadelphia, PA.
Perneczky R. et al. The International Registry for Alzheimer’s disease and other dementias (InRAD). AD/PD 2024, 5-9 March 2024, Lisbon, Portugal. #2716
Perneczky R, Darby D, Frisoni G, Hyde H, Iwatsubo T, Mummery C, Park KH, van Beek J, van der Flier W, Jessen F. Real-world datasets for the International Registry for Alzheimer’s Disease and Other Dementias (InRAD) and other registries: An international consensus. The Journal of Prevention of Alzheimer’s Disease 2025.
What is InRAD? Download our presentation to understand more about InRAD.
The InRAD Data Dictionary is an essential resource defining the structure and content of InRAD's sustainable data collection and collaboration platform
Hear from the founders of InRAD about the potential of this registry to make a positive impact on people affected by Alzheimer’s disease.
To help you join the InRAD registry study, we've prepared a detailed InRAD Ethics Submission Pack for you. This pack includes all the necessary documents to fully understand the scope and objectives of the study, including consent forms that comply with GDPR requirements and safeguard patient confidentiality.
This toolkit is designed to assist you in starting discussions with your hospital, obtaining necessary agreements, and navigating the ethics approval process. Take the first step to join the first international registry initiative in Alzheimer's disease by downloading the InRAD Ethics Submission Pack.